Patient & Family Advisory Council

Become a patient partner! If you’re interested in learning more about joining our initiative as a patient partner, please email info@gynecancerinitiative.ca

The Patient and Family Advisory Council (PFAC) is a group of dedicated patients and family partners who share their voice in gynecologic cancer research in British Columbia. This group helps to advance our knowledge in gynecologic cancers, use patient-centered approaches for knowledge translation and improve the patient experience through the cancer journey. The scope of the PFAC is to share ideas based on patient/family member experiences. This can be done, but is not limited, to the following:

  • Providing patient perspectives to improve scientific research projects
  • Writing support letters for research funding
  • Advising and partnering with researchers on designing research studies and experimental protocols
  • Identifying patient priorities in different research areas including cancer survivorship
  • Collaborate with researchers on building effective knowledge translation tools

Gynecologic Oncology Sharing Hub (GOSH) 

GOSH is a podcast co-hosted by Nicole Keay, a patient partner, and Stephanie Lam, the GCI Research Coordinator. This podcast was inspired by Nicole’s idea to create an open space for real and evidence based discussions on gynecologic cancers. We share the stories of gynecologic cancer patients and survivors and hear from researchers and clinicians who are working behind the scenes on the most updated gynecologic cancer research.  

Survivorship Summit: Gynecologic Cancers

The Gynecologic Cancer Initiative, in collaboration with the Women’s Health Research Cluster co-hosted a Survivorship Summit to 1) review the current status of what is known and what gaps exist in the science of gynecologic cancer survivorship research and 2) stimulate research and collaboration in British Columbia. This event included patient partners who shared their journey with cancer survivorship and offered important insights on survivorship research in British Colbumbia.