Gynecologic Cancer Survivorship in British Columbia: What Does Survivorship Mean to You?

Why this survey?

In November 2019, B.C.’s Gynecologic Cancer Initiative, in partnership with UBC’s Women’s Health Research Cluster hosted the first Survivorship Summit: Gynecologic Cancers, a collaborative conference to review the current status of what is known in gynecologic survivorship research. The event also stimulated research and collaboration in the province to address gaps in knowledge and practice. As a direct result of the Summit, new innovative areas of survivorship research emerged, bringing together clinicians and scientists from multiple disciplines. To continue this work nearly two years later, the Gynecologic Cancer Initiative will be hosting a series of events and activities to develop a higher-level cohesive strategy for survivorship research in BC and to leverage existing resources and programs.

How will this survey help?

The findings of this survey will help inform the Gynecologic Cancer Initiative Think Tank Series: Reimagining Gynecologic Cancer Survivorship in BC.

Who should take this survey?

Survivorship stakeholders include patient partners, community advocacy groups, physicians, researchers, and trainees in British Columbia, Canada.

About the 2019 Survivorship Summit

The Gynecologic Cancer Initiative, in collaboration with the Women’s Health Research Cluster, co-hosted a Survivorship Summit on November 29, 2019 at the University of British Columbia with 56 patient partners, healthcare practitioners, and scholars in attendance. The goals were to 1) review the current status of what is known and what gaps exist in the science of gynecologic cancer survivorship research and 2) stimulate research and collaboration in British Columbia. Patient partners also shared their journey with cancer survivorship and offered important insights on survivorship research in British Columbia.

Six high-level themes were identified: 1) comprehensive care and treatment, 2) healthcare provider education and practice, 3) prevention, 4) side effects of treatment, 5) patient and public education, and 6) connection and collaboration. Each theme contains its own set of priorities, research questions, assets, resources, and challenges, which are summarized within the summit’s final report.